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KMID : 0607320230320020101
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Journal of Korean Academy of Psychiatric and Mental Health Nursing
2023 Volume.32 No. 2 p.101 ~ p.113
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Characteristics of Early Onset Dementia and Caring Experiences and Service Needs of Family Caregivers: A Mixed Methods Study
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Kim Jin-Ha
Lee Gyung-Joo
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Abstract
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Purpose: The purpose of this mixed methods study was to explore the caring experiences of the family caregiversof patients with early-onset dementia, and identify the characteristics of early-onset dementia.
Methods: A qualitativestudy was conducted using Colaizzi‘s phenomenological method to explore the caring experiences and serviceneeds of ten family caregivers. A quantitative study was carried out by secondary data analysis to compare thedifferences in disease characteristics and comorbidities between early and late-onset dementia.
Results: Theexperiences of the family caregivers of patients with early-onset dementia were ‘Learning about dementia’, ‘Awayfrom everyday life’, ‘Facing dementia’, and ‘Barely managing’. The study also revealed that one out of five dementiapatients had early-onset dementia. However, most dementia services are concentrated on late-onset dementia.
Thus, the family and caregivers of early-onset dementia patients experience relatively inadequate services.
Conclusion: This study’s findings identified the characteristics of early-onset dementia, as well as the caringexperiences and service needs of family caregivers from a more holistic perspective, and will contribute to thedevelopment of adequate nursing intervention programs and policies in the future.
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KEYWORD
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Dementia, Family, Caregivers, Age of onset, Qualitative research
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